I don't know if you know this, but as an addendum to your post: not all HEDS sufferers have skin involvement. Lots of secondary symptoms and so on, but not always skin hyperextensibility - I don't, though my skin is velvety, thin, easily cut and bruised, and I get a whole shedload of broken capillaries showing up. My father has skin symptoms I don't, and I dislocate and subluxate more than he does.

It can vary - the dermal hyperextensibility's no longer required by half the experts, or so my research tells me.

Thanks for the post, though. Some of it may help me when I finally get to see a physiotherapist (it's been years, and the last one had no idea what she was doing).